Just don’t understand
I gripped the handle bars on my bicycle set up in our living room, mentally telling my knee to move, to stretch, to surprise me. I could feel the tears forming. My husband stood beside me, watching, a look of concern on it face. I grunted in frustration as my knee throbbed and didn’t move like I wanted it to. The tears started to fall.
“My love,” RP said tentatively, “What’s wrong?”
“You wouldn’t understand,” I sighed, moving my leg back the other way on the bike.
It was the third time I’d said that to my husband that night and while this time it was resigned, the first had been sharp and accusatory. He slipped quietly away leaving me to my ball of frustration and angst.
Later, we lay in bed and he gently asked. “Please tell me what I don’t understand. I’ll listen, not talk. I promise.” His brown eyes softly pleaded.
And so I tried to explain what’s inside me.
Now I could list a whole host of reasons why in the past 7 weeks I am lucky since the staph infection came calling. They range from supportive friends, devoted husband, good health insurance and the fact that it “could have been worse.” And those are important to remember. I’ve tried hard to stay positive knowing that wallowing in pity won’t do a damn thing to heal me.
But it’s lonely in here sometimes. Even though my husband is a 20 year cancer survivor, of his own admission he doesn’t remember much of the pain and always notes he was a 21 year old college student who thought he was invincible anyway. So my attempt to try to relate to him on that level failed.
It’s nearly impossible to explain the well of confusion I’ve felt when trying to figure out how much to push myself. Am I really being a pain wimp or does that really hurt beyond anything I can tolerate? Sure I’ve come leaps and bounds on one level but I still can’t bend my knee more than 90 degrees and can’t walk normally.
I’ve had nurses come to the house when I had my iv line and wound dressings. I’ve had Albert come daily for the past 4 weeks to push and prod my knee towards its normal self. He’s told me jokes, stories and even flirted with me a bit. But even just yesterday, I nearly choked myself with sobs during our physical therapy session. I could blame it on lack of sleep or all kinds of things. But the bottom line was that my knee really, really hurt as he tried to bend it, my leg was shaking with effort and the frustration and loneliness welled up inside me and burst.
Because for all the support, the words of encouragement, the love and the positive thinking, unless you’ve had a similar experience to mine, you just don’t understand. Someone said to me on the phone yesterday that this will someday all be like a bad dream that I won’t really remember. I sure hope so, I thought. Because memories of being in the hospital unable to get out of bed to pee without a nurse lifting my leg and being given yet another pair of slipper socks after since I didn’t quite make it are still fresh in my mind. Because even now, when I am come so far, there are times that no matter what I do with my damn leg I can’t sit or lie down and feel comfortable. Because I am scheduled to go back to work part time next week and I am scared shitless. Because one of the most beautiful Augusts weather-wise has passed by with me just watching from my wingback chair surrounded by medication and papers. Only I can feel those experiences and only I know how crappy it has all been. And so yea, it’s lonely in here.
And so my beloved husband listened as promised as I spilled out my frustrations and loneliness. And then he did all he could do, he said he loved me and he held me tight.







I am a 41 year old woman lucky to live in Vermont. I live with my husband, Running Professor, and my 8 year old daughter, lil moonspun. Read more about me in